Knowledge today.
Hope tomorrow.

The Danon Foundation is a trusted resource for people affected by Danon disease to find and share knowledge and to build community.

What is Danon disease?

Danon disease is a rare, genetic condition resulting from a genetic mutation or deletion on the X chromosome. It is a type of lysosomal storage disorder that causes the build-up of toxic materials in the body’s cells, which can cause health issues with the heart, muscles and brain cells.

Our Vision

To redefine life with Danon disease through knowledge, discoveries, and courage.

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