Current treatments and interventions for Danon disease address the symptoms and often require a team of specialists.
Your care team may include some or all of the following specialists: cardiologist, neurologist, ophthalmologist, geneticist, genetic counselor, rehabilitation physician, educational specialist, and physical therapist.
We have additional information on our website on which specialists may be helpful in managing your symptoms. There is currently no FDA-approved therapy known to cure the underlying issues caused by Danon disease and the LAMP2 protein deficiency.