Back to posts Danon Awareness Day Toolkit is Now Live

Join us on October 24th to raise awareness for the Danon disease community!

Why It Matters

Danon disease is rare. It can take years to get a diagnosis, and few people outside our community understand what it means to live with this disease every day. We are using this as our chance to be seen, to be heard, and to remind each other that no one in this community is facing Danon alone.

Our Danon Awareness Day Toolkit is now available on our website. To get involved or learn more, visit: https://www.danonfoundation.org/resources/danon-awareness-day/

If you’d like to get involved or have questions, send us a note!

Add It to Your Calendar

Don’t want to lose track of the date? Add it now:

• Add to Google Calendar
• Download the calendar file (.ics)