Newly Diagnosed You’re not alone Perspectives from our community On Getting Diagnosed “Having a diagnosis has actually helped a lot. She now knows why she always felt so unwell and now feels empowered and has found confidence that she never had before! We want to raise awareness of Danon Disease and improve treatment options and outcomes for patients and their families.” Joanne Read: You were just diagnosed with Danon: Now what? On Moving Forward “We only get one chance at life. A chance to grow up, dream big, find our purpose and make the dreams a reality.” Jesse On Danon “We have Danon but it does not have us!!” Melody You were just diagnosed with Danon Now what? Danon Disease is a rare, genetic condition What does this mean for me and my family? Information and Resources for Caregivers As a caregiver, it can be physically and emotionally challenging to care for a person with Danon Disease.
Information and Resources for Caregivers As a caregiver, it can be physically and emotionally challenging to care for a person with Danon Disease.