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Published on April 14, 2026
Announcing the Danon Foundation’s Courage Fund!
We are proud to announce the launch of the Danon Foundation’s Courage Fund. This is a new program designed to support the whole-person behind every research journey. Living with a rare disease and participating in clinical research is an act of extraordinary courage, and it often means long days in unfamiliar cities, away from home and the routines that bring comfort.
The Courage Fund offers a one-time stipend of up to $250 to eligible individuals living with Danon disease who are actively participating in a qualifying research study or clinical trial. This isn’t compensation for participation – it’s an invitation to take a step away from the clinical setting and enjoy a moment of normalcy.
Learn more about eligibility and how to apply below. For additional questions or to submit your application, please contact us at: contact@danonfoundation.org