Our Partners We are committed to bringing trusted information and support resources to the Danon disease community. We have a closed community group for people living with Danon disease to share their experiences, ask questions and provide support to each other. Many of our partner organizations also provide information that can help you along your journey with Danon disease. Danon Community Support Community support is available through our private Facebook group for those living with Danon disease. Join Our Group! Global Genes We are proud to be a member of the Global Advocacy Alliance! The mission of Global Genes is to connect, empower and inspire the rare disease community. Among other things, Global Genes hosts an annual Rare Patient Advocacy Summit, which brings the rare disease community together. It’s a tremendous event that inspires hope and builds community. Learn more EURORDIS – Rare Diseases Europe The Danon Foundation is a proud associate member of EURORDIS – Rare Diseases Europe, a unique, non-profit alliance of over 1,000 rare disease patient organisations from 77 countries that work together to improve the lives of over 30 million people living with a rare disease in Europe. Learn more Global Heart Hub The Danon Foundation is proud to be an affiliate of the Global Heart Hub. Global Heart Hub is the first global non-profit umbrella organisation of patient organisations and patient advocates to provide a voice for those living with or affected by cardiovascular disease. Learn more Genetic Cardiomyopathy Awareness Consortium In 2023, the Genetic Cardiomyopathy Awareness Campaign and Consortium (“GCAC”) was launched by the DCM Foundation along with all major cardiomyopathy patient groups, and eight biopharma companies. Learn more Hypertrophic Cardiomyopathy Association HCMA provides support, advocacy, and education to patients, families, the medical community, and the public about hypertrophic cardiomyopathy while supporting research and fostering the development of treatments. Learn more